Epilepsy Foundation Services
The Epilepsy Foundation is committed to reaching and supporting people who live with epilepsy. We are also here to assist individuals and organisations who support, care for or work with people who live with epilepsy. Click here to read the Epilepsy Foundation Services brochure.
Information and Resources
The Epilepsy Foundation’s Information Line (InfoLine) operates Monday to Friday between 9 am and 4 pm. The Information Line is staffed by Epilepsy Support Workers with expertise in how epilepsy affects health, wellbeing and daily living issues incorporating person-centred, self-management strategies.
We do our best to be responsive to all referrals, although waiting periods may apply in busy periods. Please indicate on referrals the urgency as referrals can be triaged depending on need.
The Epilepsy Foundation is able to arrange interpreting services for people from non-English speaking backgrounds.
Epilepsy Support Workers are available to assist people living with epilepsy and their families and support networks. Epilepsy Support Workers can provide:
- advice and information about epilepsy
- advice about risk management and living well with epilepsy
- individualised support for people living with epilepsy who require assistance with accessing supports and community resources
- development of tailored Epilepsy Management Plans.
People are able to self-refer to our services. We also welcome confidential referrals from health professionals.
National Disability Insurance Scheme (NDIS) Support
The Epilepsy Foundation is a registered NDIS provider. NDIS participants will need to have the Epilepsy Foundation in their NDIS plan if continued support from the Foundation is needed.
- information about the NDIS (National Disability Insurance Scheme)
- pre-planning services to assist in deciding what goals should be included in an NDIS plan
- epilepsy specialist assessment and support
- development of Epilepsy Management Plans
- education and training for families and support organisations.
Visit our NDIS and You page for more information.
Education and Training
The Epilepsy Foundation offers evidence based person-centred training programs. Our training programs increase awareness and understanding of epilepsy in the community.
Past participants have told us that they feel more confident in recognising seizure activity and providing person-specific support after completing our training programs. Our training programs are designed for families, schools, communities and the workplace.
People living with epilepsy experience better outcomes through improved epilepsy knowledge, epilepsy management plan development, seizure first aid response and training in emergency medication administration.
For more information on training available visit https://learning.epilepsyfoundation.org.au
A number of peer support groups are run throughout the year for families, young people and adults living with epilepsy.
Our website, Facebook page and blog provide opportunities for people living with epilepsy and their families to connect with others and share their stories.