Latest Research News provides updates on projects conducted through the Epilepsy Foundation, as well as news on interesting research from around Australia and Internationally.
News on Epilepsy Foundation research and collaborations can be found below.
Information on clinical trials and research being undertaken in Victoria can be found under Current Projects and Trials .
Interesting news on current epilepsy research can be found under Epilepsy Research in the News.
June 2019 - UCB Survey Results
Thank you to everyone who participated in the recent UCB study looking at the associations between AEDs and quality of life. This study was conducted by UCB in collaboration with the Chronic Illness Alliance, Epilepsy Australia, Epilepsy Foundation and Epilepsy Action Australia. The results of the survey were presented at the ANZAN 2019 Annual Scientific Meeting in Sydney this May.
Over 950 people participated in the study, and responded to questions about themselves, their quality of life, side effects related to their medications, and other comorbidities. This was an important look at living with epilepsy among people in the community, as a lot of research to date focusses on the experience of newly-diagnosed epilepsy, or severe epilepsy in hospital settings.
The study found that psychiatric comorbidities and memory problems were very commonly reported among people living with epilepsy, and both were particularly reported as having a negative effect on quality of life.
A plain language summary of the findings can be found here.
June 2018 - The 2018 GETA Conference
The Epilepsy Foundation was also very grateful to be able to support and attend the 2018 GETA conference in Melbourne. This conference and the amazing work that the GETA group have been doing is testament to the incredible work and advocacy of some families of children living with epilepsy.
GETA is a group of parents whose children have rare genetic epilepsy. They have teamed up with world leaders in the field of genetic epilepsy to achieve the goal of supporting the ground-breaking research that happens right here in Australia and New Zealand.
Some of this research, as well as that occurring in the USA and Canada, was showcased on the day. Parents and siblings of children living with genetic epilepsies also shared their experiences. Listeners tuned in to the livestream from all over the world.
The 2018 GETA conference was more than a series of talks, it was the meeting and establishing of a community of incredible families working hard to make a difference for people living with epilepsy.
Recordings of the sessions can be found at: https://www.geneticepilepsyteam.com.au/conference-2017/
If you are interested to know more about GETA, you can find them on …
May 2018 - The 2018 APNA Conference
The Epilepsy Foundation was privileged to be invited to speak at the 10th annual Australian Primary Health Care Nurses Association (APNA) conference in Brisbane in May – and not only to escape the Melbourne rain for some Brisbane sunshine!
The conference had a fantastic program, ranging from better nutrition to self-management to immunisations. The conference focussed on the role of the ‘Nurseforce for the future’ and how crucial primary health nurses are to the betterment of our healthcare system.
As part of this vision, the Epilepsy Foundation presented on the education and training programs we have developed specifically for nurses, and how nurses can help people living with epilepsy and their families create comprehensive epilepsy management plans.
The Epilepsy Foundation believes that the primary health care nurse could play a crucial role in helping to improve the lives of people living with epilepsy, and the Epilepsy Foundation wants to work with nurses to achieve this end!